Blogging about my experiences of traveling, eating, and fighting cancer Dave Chalk Style.
Tuesday, December 13, 2011
Christmas Break!
27 page papers about sex scandal
15 annotated bibliographies
10 blood transfusions
9 great grad school cohort friends
8 hours per day spent in the Stats lab during the last month(average)
7 papers
6 classes left in grad school
5 GOLDEN RINGS!!!!!
4 combined millimeters in tumor shrinkage during the semester. (turns out grad school is the greatest chemo treatment of all!)
3 hour stats final
2 weeks of missed school due to health complications
1 semester of Grad School DONE!!!!
and a partridge in a pear tree.
This past semester has been my favorite that I have ever had. I have made some great friends, learned a lot about myself, and had the greatest research partner you could ever have. Special thanks to Kelsey for sharing in my love of sex scandal Apologia. (she was my research partner)
But, I am now done with school until next Year!!!!!!!
Just want to keep you all update.
Merry Christmas to all and to all a good night.
Tuesday, November 22, 2011
Thanksgiving Update
Thursday, November 10, 2011
Sex scandals and Cancer Fighting
Thursday, November 3, 2011
Still Fighting It
Saturday, October 29, 2011
Another round of chemo....Done
It was no where as bad as the chemo that wiped me out for 2+ weeks.
This chemo was much more pleasant. (if chemo can even be pleasant.)
I go in for a doctor appointment on Monday to have my counts done and plan for what the next move is.
At this stage in my treatment there is no roadmap or precedent for what to do for treatment. We are just playing it by ear and taking it one treatment at a time.
Until next time enjoy Halloween. I am not sure what I am going to dress up as yet. Suggestions are welcome. (if you can incorporate my bald head all the better!)
Friday, October 21, 2011
Last Weekend of feeling good
Friday, October 14, 2011
Chemo starts Oct 24
Monday, October 3, 2011
Getting back in the habit
Tuesday, September 20, 2011
Dave Chalk Update
Life for me has been super crazy since last Thursday. I went in for a routine blood check and little did I know, but in the last 6 days I would have had 10 blood/platelet transfusions.
When I went in on Thursday my platelet count was at 0, yes zero. Now when you have no platelets your body has no way to prevent bleeding and make me more prone to random bleeding.
To have a healthy platelet count you should be above 50. I had a long way to go before my (blood) counts would get back to the healthy count. Yesterday was the only day that my platelet count was above 20 (Which is high enough to not need a transfusion). Today they were at 17 so once again I received another transfusion.
To add to the low platelet count, I also have had a VERY VERY low white blood cell count which is why my doctors put me under house arrest, because even a “Bubble Boy” has a better immune system than I do at the moment.
I go in tomorrow and I hope that I will be above 20 so that my body does not need to get poked, because at this point a needle has poked me at least 36 times since Thursday. This combined with low platelets and white blood cells I think a hardcore heroin addict’s elbows look better than my do at this point. (This is true I do not say this just for comedic relief, but that it is funny and true).
Well that is all for now. Just want every to be caught up with my life so we can all be on the same page.
Wednesday, September 14, 2011
Story about my experiences with The Make-A-Wish Foundation
here is a little featurette about me on The Make-A-Wish Foundation of Utah's blog.
So Read It!
Sunday, July 24, 2011
Happy Pioneer Day!
Friday, July 22, 2011
Lunch at Olive Garden with MAW peeps
I made it back to Utah
Sunday, July 17, 2011
Declassified Files: Operation Superhero
Thursday, July 14, 2011
Radiation
Why use Radiation?
Radiation therapy is commonly applied to the cancerous tumor because of its ability to control cell growth. Ionizing radiation works by damaging the DNA of exposed tissue, furthermore, it is believed that cancerous cells may be more susceptible to death by this process as many have turned off their DNA repair machinery during the process of becoming cancerous.
Since radiation uses many random beams to target the cancerous site it is important to make sure everything is all lined up so that you do not fry the wrong part of your body.
Tuesday, July 12, 2011
Heart Juices Update
After getting all the test done and getting the results a few hours later. Everything is ALL clear in the respects to the heart juice problem. The cancer unfortunately still likes me.
So with that now in the past I am finishing up Radiation and wil be done this Friday. (without any unforeseen excitement.)
That is the update for today.
I hope to post pictures of the process of radiation, since I have been receiving question about what and how radiation works.
Today:
Echo: 1
Chest X-Ray: 1
Needle Poke:1
Visit with the most awesome Dr. Schiff: 1
Radiation treatment: 1 hours worth
visit with Dr. Murphy (The radiation doctor:) 1
That is all for today more updates to come.
Monday, July 11, 2011
Photo-journal post of the pericardiocentesis
Wearing my three google shrirt! Thanks Ash!
Wearing the oxygen mask that was made for a 10-year-old. Also you can tell the many pain meds are setting in and I am going loopy.
The mask made my nose itch like crazy!!!!
Getting my EKG on the heart to verify that liquid is all up in my heart's business
Me looking very drugged out and although it may not look like I am still happy and enjoying my time..my mother just liked taking pictures when I was not noticing. Love her!
Headed to surgery to insert a catheter to remove the 10 liquid ounces of fluid giving me immense chest pains
Close up of catheter that shot to my heart. It was a nice one. We hung out for a few days.
The Catheter was hooked up to a bad that would collect my heart chest juices. Me finally being able to rest after the crazy day and fighting of pain med coma to get everything ready pre-surgery.
At this point I was Good Night Moon!
I had a video taken of the catheter moving in and out as my heart beat, but I am having troubles.
Enjoy the pictures and hopefully the video will guest appear of the next post.
Sunday, July 10, 2011
Home Again Home Again Jiggy Jig
I am also looking forward to sleeping in my bed tonight and not being woke every few hours by a nurse needing to give me drugs, take my vitals, or blood.
I am glad to be home, but also very thank for the staff at Children's Hospital in San Diego. They really take care of me.
I will be starting radiation again tomorrow and return back to the hospital for follow up tests on Tuesday.
So enjoy the downtime while I can.
Thanks again to everyone for the well wishes, texts, emails, phone calls, thoughts, and prayers!
Saturday, July 9, 2011
I thought it was a feeling of Patriotism
In between the two events we went home and took naps during which I started to develop a slight pain in the chest. I assumed it was a small side-effect from radiation so took some pain meds and took a nap.
The pain continued to get worse and and hurt more and more until I finally informed my Doc on Wednesday night and she scheduled me to come in ASAP in the morning.
So Thursday I went in to the cancer clinic I always go to expecting to get some pain meds and to go home and rest.
However....surprises laid ahead.
As the day progress I had an echocardiogram....then a EKG and more and more doctor showed up (most of them I had never met so I started to put two and two together to realize that I was probably not heading home.)
Then all of a sudden I was headed in for surgery procedure called...Pericardiocentesis.
What wikipedia has to say about it...
pericardiocentesis is a procedure where fluid is aspirated from the pericardium (the sac enveloping the heart)
It is generally done under ultrasound guidance, to minimize complications. There are two locations that pericardiocentesis can be performed without puncturing the lungs.
One location is through the 5th or 6th intercostal space at the left sternal border at the cardiac notch of the left lung.
The other location is through the infrasternal angle.
Indications include cardiac tamponade, as well as the need to analyze the fluid surrounding the heart. Cardiac tamponade is a condition in which an accumulation of fluid within the pericardium creates excessive pressure, which then prevents the heart from filling normally with blood. This can critically decrease the amount of blood that is pumped from the heart, which can be lethal. The removal of the excess fluid reverses this dangerous process. Examples of the need for fluid analysis would be to differentiate whether a fluid collection within the pericardium is due to an infection, spread of cancer, or possibly an autoimmune condition.
So since then I have been in the hospital with the catheter hanging out of my chest...it moves as my heart pumps that is kinda of crazy but awesome all at the same time.
That is the update...
Echo...3
X-Rays...3
CT scans...1
Pills...50
Pokes...15
PARTY ON DUDES!!!!
Friday, July 1, 2011
Radiation Update
This means that I will have to get 2 more weeks of work. And will be in San Diego until July 14th. This is good news for some and bad news for others. It just depends on where you live.
If you live in the Southern California Area call, text, or email me and I would love to hang out with you.
I will get a better post later about radiation.
Just wanted everyone one to know I am alive and fine.
Monday, May 30, 2011
Chemo: Day After
Chemo Eve: Round 4
Storytime
It started on Monday night, I did not sleep well due to:
This is not completely weird because it is one of the biggest side effects of the newest chemos that I have started taking. So are part of the protocol at that the first sign of diarrhea you take two of these.
Then one every two hours until you have not had a bowel movement for 12 hours. So after following this protocol. I felt like this for 6 days.
Because the Immodium AD had worked so well. I was backed up! (I tried to think of some joke here, but nothing came)
After 6 days of INTENSE side pain due to this build up. I bought some of this.
Sunday, May 29, 2011
They made a movie about me and my roommate Brandon!
Monday, May 23, 2011
Cancerous Answers to Cancerous Questions
On night during this past January I was awaken by a very bad pain on the lower side of my left chest. It had been roughly five months since my last chemotherapy treatment in Aug. 2010. I was not too concerned with the pain at first because I was just started to be active again. I started running, playing sports, and being more active (compared to being a cancer patient where you get winded walking up a flight of stairs.)
I just assumed the pain was the fake half of my left diaphragm that was just being stretched out due to the increased physical activity. After about a month of dealing with the near constant pain I decided to go to talk to my Utah cancer doctor to get some pain meds to hold me over until I had my scans in March.
Since the pain had lasted so long I thought something might be up, but just blew it off hoping that my rationale of it being my diaphragm was correct.
What graduate program? –Danna
I will be starting the Mass Communications master program and Brigham Young University starting Aug. 29th 2011.
Where are you doing treatments now? –Kelsey
I am receiving chemo treatments at the Utah Valley Medical Hospital in Provo on the corner of Bulldog and 500 West. It is in the main lobby where the big revolving door is. It is called Utah Cancer Specialists. You are all invited to attend during any of my chemo treatments.
I will also be receiving radiation treatments down in San Diego in late June.
Kelsey also asked this great question: What's the one treat that still sounds good after a bout of chemo?
Although I do not eat a whole lot immediately following chemo, some treats that I do enjoy are white chocolate macadamia nut cookies, funfetti cake, Mothers Circus Animal Cookies, Blue Gatorade, and Beef Jerky (The jerky gets me the protein during my lack of eating full meals.) However, I am open to trying any homemade baked good (especially if it is from scratch.) I probably spent more time on this question than I should have.
The Last Question for this go-around:
How do you really feel about this? Is it scary? Is it just normal? Are you upset about it? More upset that its round 3 and you have already had to do it twice? Do you really just take everything as it comes and just like go with it? I suppose I am a girl and am interested in more emotions about this. Not that you haven't shared any just that my brain works like this
This is a very loaded question. How do I really feel about this? Well, I must admit that I was not excited about winning the cancer raffle for the third time; however I am not bitter, scared, or upset. I have done a lot of meditating during my second and third time of fighting this ugly cancer disease and I have come to the conclusion that I have been reluctant to share due to the lack of happy thoughts that it contains, but here it is.
Sorry for the change in font the computer is being funny(I did not change it for dramatic effect)
I HAVE REACHED THE CONCLUSION THAT I AM A LIFER. I HAVE ACCEPTED THAT I WILL PROBABLY NEVER BE CURED OF CANCER AND THAT I WILL BE FIGHTING THIS FIGHT FOR A VERY LONG TIME. I KNOW THIS MAY BE HARD FOR SOME OF YOU TO READ, BUT I HAVE COME TO TERMS WITH IT. I HAVE REACHED THE POINT WHERE I WILL CONTINUE TO FIGHT THE FIGHT TO THE VERY END AND ENJOY LIFE ALONG THE WAY.
I AM EXCITED TO LIVE A FULL LONG LIFE IT WILL JUST BE VERY DIFFERENT THAT THE NORMAL. I WILL HAVE TO BALANCE SCHOOL, WORK, FRIENDS, AND FAMILY ALONG WITH DOCTORS, TREATMENTS, DRUGS, AND SICK WEEKENDS.
NOW PLEASE DON’T BE SADDENED BY THIS ANSWER I AM JUST TRYING TO BE OPEN, HONEST, AND LET MY UNCENSORED THOUGHTS BE HEARD. MY HESITANCY TO WRITE THIS HAS BEEN FOR MY FAMILY, BECAUSE I DO NOT KNOW HOW FAR THEY HAVE COME TO GRIPS WITH WHAT THE FUTURE HOLDS FOR ME.
I AM AT PEACE WITH IT AND WILL NEVER STOP LIVING LIFE TO THE FULLEST EVEN IF IT IS JUST WATCHING DEAR JOHN WITH AN APARTMENT FULL OF GIRLS, WORKING GRAVEYARD SHIFTS, OR LAYING IN BED ALL WEEKEND REBOUNDING FROM A ROUGH CHEMOTHERAPY TREATMENT. I KNOW THERE IS A TOMORROW AND THAT IT WILL BE BETTER AND THAT I AM SURROUNDED BY PEOPLE WHO LOVE ME.
MY FUTURE IS BRIGHT, I START GRADUATE SCHOOL IN THE FALL AND HOPE TO CONTINUE ON TO OBTAIN A PHD. AND BE A COLLEGE PROFESSOR SO THAT I CAN PASS ON SOMETHING WORTHWHILE TO THOSE WHO COME AFTER ME. PLEASE DO NOT FEEL SAD OR SORRY FOR ME, BECAUSE I DO NOT HAVE THESE FEELINGS FOR MYSELF.
CANCER CANNOT STOP THAT! CANCER ALTHOUGH HAS BEEN THE MOST ANNOYING THING TO EVERY HAPPEN IN MY LIFE IT HAS ALSO BEEN THE GREATEST THING, BECAUSE AT THE YOUNG AGE OF 16 I WAS ABLE TO GAIN A PERSPECTIVE THAT TAKES MOST PEOPLE YEARS EVEN DECADES TO GAIN. LIFE IS TOO SHORT TO LIVE IN FEAR, BITTERNESS, OR RESENTMENT. IT IS A WASTE OF TIME; EVERYONE HAS PROBLEMS THEY ARE DEALING WITH.
MY TWO MOTTOS THAT I HAVE DEVELOPED SINCE MY INITIAL DIAGNOSIS WHEN I WAS 16 YEARS OLD ARE:
1. SOMEONE ALWAYS HAS IT WORSE THAN YOU.
2. WHAT IS THE POINT OF EXTENDING LIFE IF YOU ARE NOT GOING TO LIVE IT.
I AM EXCITED ABOUT MY CANCEROUS FUTURE (HOWEVER I WAS HOPING THE WHOLE RAPTURE THING WOULD HAVE WORKED OUT.)
THANKS FOR SUBMITTING YOUR QUESTIONS AND FEEL FREE TO CONTINUE TO SUBMIT THEM AND CONTINUE TO ASK ANY QUESTION YOU WANT. I AM VERY OPEN AND WILLING TO ANSWER ANYTHING. (HOPEFULLY THIS POST HAS SHOWN THAT.)
Thanks again for all the love and support. I love you all! Hopefully this is not to much information.
Sunday, May 22, 2011
New Chemo Drugs
Drug #1: Irinotecan
Trade name: Camptosar, Camptothecan-11, CPT-11
Category: Chemotherapy Drug
Classification: Irinotecan belongs to the general group pf drugs known as topoismerase inhibitors.
Action: Irinotecan disrupts the growth of cancer cells by preventing the development of elements necessary for cell division. The drug cannot distinguish between cancer and normal cells, so some normal cells are affected, causing side effects.
How drug is given: Irinotecan is given intravenously over 90 minutes
Precautions: Tell you nurse if you start sweating, become nauseated, have abdominal cramping, or diarrhea. You nurse will give you special medication to stop this reaction.
Side Effects:
More Common Side Effects:
Severe diarrhea occurring the dy of treatment or up to 1 week after treatment
Nausea
Vomiting
Decreased white blood cell count with increased risk of infection
Sweating, abdominal cramping, or diarrhea during infusion
Fatigue
Less Common Side Effects: Flushing during infusion
Rare Side Effects:
Decreased platelet count with increased risk of bleeding
Decreased red blood cell count leading to anemia
I know this is A LOT of information and I do not understand at least half of it. But, This information is verbatim from the piece of paper that they gave me and I am trying to share all the information during my treatment.
Drug #2: Temodar
This is a oral drug that supposedly targets just the cancer cells. I take two pills every evening before I go to bed for five days after every other chemo treatment. The oral treatment is kind of a catch 22. The side effects are not as harsh as the intravenous chemo drugs, but since you take them for five days the feeling lingers and it takes longer to feeling better and get back to a normal eating schedule.
I am working on the blog post of answering all the fan mail questions. I have been a little slow because the oral medication has kept me in bed not feeling that great. I will try to improve my blogging updates.
I just want to thank everyone again for your support. It really brightens my spirits. (Sorry if some of my responses do not make sense, the drugs make me a little loopy.) I love getting the texts, emails, comments, and phone calls seeing how I am doing. Since I now live by myself it is even better to hear from everyone.
Needle Pokes: 8
Pills: 30
Diet since Thursday: Bread, Cream of Broccoli Soup, and Gatorade.
Hospefully my stomach will warm up to more solid food soon!
Wednesday, May 18, 2011
Chemo Eve Once Again
I will be receiving new types of chemo so it will be interesting to see how sick I get after these new ones. Will I feel as sick as the others? I will have to wait and see. The anticipation is like Christmas Eve as a child. I don't think I will be able to sleep much tonight. (This lack of sleep may also be because I work until 4 a.m. in the morning)
Once I get all the skinny on the new chemos I will let you all know with a blog post.
However I have been receiving many emails and messages about posting a picture of my WONDERFUL boxer blanket!
Here it is! All of my old boxer shorts (minus the old smelly stained ones)
Also continue to email me questions you have. My next post will have questions and answers that have been submitted from my readers!
Wednesday, May 11, 2011
Malignant Update
The consensus is that I will switch chemo treatments to a different regime. (Once I get all the details I will post them like I did the last ones.)
I will resume treatment again next Thursday, May 19th. Don't worry I will continue my superstitions.
I also got good news from my graduate program that I will be attending in the fall. I got an email today that stated I received a full-tuition scholarship. I have not been this excited since I went to surf camp with Kevin Costner's daughter Lily. (Should have been more on my game then.)
That is the update for now. Sorry there is not more. I will continue to keep posting. Let me know if anyone has questions. I love to answer them.
Needle Pokes: 7
Pills: 20
Time took to watch season one of 30 Rock: Less than 48 hours.
Thursday, May 5, 2011
Yeah! it is only Pneumonia!
Friday morning I went and had my CT and then went to the Oncology floor of the hospital. There I met with the wonderful Dr. Schiff and she informed me that there was a large new mass in my right lung that was approx. 4 inches. (This was not good new because it meant that I could not get Chemo and I had the best nurse assigned to me that day, we were going to have a party and do some chemo dancing.)
Anyways, I did not receive chemo because they do not give chemo when cancer patients have infection because they do not want to deplete the white blood cells that are fighting so valiantly against the bad stuff.
Instead of chemo I was signed up for minor surgery to have a CT guided biopsy so that they could determine if the new large mass was cancer or an infection.
So I partyed all weekend, ate at the Yellow Deli, had a surprise vist from Brandon Scott RIggs! So Monday came and I went in for surgery. You have to arrive two hours early so it is A LOT of waiting.
Now this is the same procedure that I had done on the left lung last time that determined that I had cancer for the second time.
After surgery I woke up and stuck to being the usual Dave Chalk when I am waking up from surgery, for some reason when I am waking up from surgery I am super sarcastic and quick witted and usually get into it with the nurse. (It is all in a loving way and the nurses dish it right back to me so it is a good time)
The nurse then went and got my parents (which she asked if I had a girl friend. My parents let out the reluctant sight of, No)
The X-Ray man then came a took an X-Ray of my lungs to make sure that it did not collapse or anything crazy from the surgery.
When I was finally discharged I was told to be on bedrest for 4 hours. So My father drove me home. We picked up my sister Emily and my Utah roommate Brandon Scott Riggs and we went to the Padre Game! (Perfect Environment for recovering from lung surgery!)
So Yesterday I received the wonderful news that the large mass is not cancer and that it is just an infection. Which is EXCELLENT! (Imagine me saying that like Bill and Ted followed by some air guitar.)
But they fear that it may be early stages of pneumonia! (Which is so must better than cancer and I have never had that one before. My parents told me growing up that you should be open to trying new things. So after spending a few days with pneumonia I will let you know if it is something you should look into getting.)
That is all from the Life of Dave Chalk the Cancer Patient.
Totals from round three's battle with Cancer
Needle Pokes: 6
Pills: 20
CT scans: 3
Surgeries: 1
new mini blizzards from Dairy Queen: 1
Monday, April 25, 2011
The Graduate
My whole family was able to attend and support me in the celebration.
I will now enjoy my first summer of no school since the High School years and start my Masters in Mass Communication in the Fall.
Thanks to Nicki and Mary
Thanks for the Baseball Easterness. You know me too well!
This summer will be full of fun times!
Thanks to Leah and Cassie
When I awoke the following morning I can better see what I had tripped over. It was a WONDERFUL Get Better Pre-Easter Basket brought by these two amazing women!
Here are the contents of the basket: My favorite part was the Mr. Bubble and relaxing bubble bath both of which I have used to my advantage.
Also in the basket was this awesome puzzle card.
On the back it read: Cancer Sucks (as we all know)
But you never, ever let it show
We hope this finds you in your lowest low
And a chemo side-effect will make your hair re-grow!
Love,
Leah & Cassie
THANK YOU LEAH AND CASSIE! YOU ROCK!
Tap Class
I was the only boy in the class so I kind of stood out. It was a fun semester and the whole class became a family and we enjoyed spending time together twice a week in class.
Once I was re-diagnosed I was no longer able to go to class and after a while my classmates asked my teacher why I was no longer coming. She spilled the beans (those were her words like I was trying to keep it a secret or something.)
For the final day of class we had a little party and I was able to attend. They presented me with this awesome card!
On the cover are pictures of a few legendary tap dancers. (Eleanor Powell, Fred Astaire, Shirley Temple, and Savion Glover to name a few)
Inside of the card:
Thank you to the whole tap class! Also thanks to Quintin my tap buddy and maker of the card! It is awesome!
Sorry
I went to the doctor got some legit cough syrup and some antibiotic and I am coming back to the real world.
So that mixed with my family being in town for my graduation from college it has been hard to find time for blogging, but I will be back to blogging every few days to keep everyone up to date on the fight against cancer.
I will be having scans this upcoming Friday to figure out the future of treatment/surgery so there will be a update after that.
Thanks for the well wishes! The most asked question is to post pictures of my boxer blanket. Those will be coming soon.
Saturday, April 16, 2011
The Day After: Chemo Round 2
As My friend Jessica Sullivan and her husband came to my treatment to keep me company. It was great to have company because it helps the time go by faster and is not as boring. So a special shout-out and thanks to them!
Also, I have been getting A LOT of question about the exact chemo I am currently receiving. So here is a detailed list about both of them.
So here it is:
Drug #1: Vinorelbine
Trade Name: Navelbine
Category: Chemotherapy Drug
Classifications: Vinorelbine belongs to a general group of drugs known as plant (vinca) alkaloids
Actions: Vinorelbine disrupts cell division, resulting in cell death. This drug cannot distinguish between cancer and normal cells, so some normal cells are affected, causing side effects.
How Drug is Given: Vinorelbine is given intravenously over 5-10 minutes
Precautions: Tell nurse immediately if you have any stinging or burning in the vein during or after the drug is administered.
More Common Side Effects:
Decreased white blood cell count with increased risk of infection
Numbness and tingling in hands and/or feet
Darkening of vein used to give the drug
Constipation
Less Common Side Effects:
Nausea
Vomiting
Sores in mouth or on lips
Hair Loss
Decreased platelet count with increased risk of bleeding
Drug #2: Gemcitabine
Trade Name: Gemzar
Category: Chemotherapy Drug
Classification: Gemcitabine belongs to a general group of drugs known as antimetabolites
Action: Gemcitabine disrupts growth of cancer cells. The drug cannot distinguish between cancer and normal cells, so some normal cells are affected, causing side effects.
How drug is given: Gemcitabine is given intravenously over an hour
More Common Side Effects:
Decreased white blood cell count with increased risk of infection
Decreased platelet count causing increased risk of bleeding
Decreased red blood cells with anemia
Fatigue
Less Common Side Effects:
Diarrhea
Sores in mouth and lips
Skin Rash
Hair thinning
Nausea
Vomiting
If you have anymore questions about any aspect of the treatment feel free to email me. I am very open and love to help others better understand the world of cancer. It can be a scary world, but there is hope!
Needle pokes: 3
Pills: 13
Happy Saturday! More post to coming in the next few days so if you want your questions answered now is the time to do it. You can either facebook them to me or submit them through email. There is a page on my blog entitled "Submit questions." Even if I don't know you and you have been blog stalking me your questions are still welcome!
Wednesday, April 13, 2011
Thank You J-Port
For some reason during that freshman year I gave her the nickname J-Port. Her maiden name is Porter so that is where the nickname came from.
Since then she has graduated and become a second grade teacher.
She had the awesome idea to make me a book to help me get better. It is entitled, "To Help Me Feel Better" by: Mrs. Sullivan's Class. Each student wrote me some advice to get better and drew me a picture.
When she stopped by to drop of the book it came with a basket for of goodies! The basket consisted of candy, an itunes gift card, and a cute stuffed animal. These three things were the consensus of what would make me feel better.
I took a picture of a couple of my favorites:
This one was written and illustrated by Denim. It says: "When I feel sick I like to sing a lot and A LOT. That's what I do to help me feel better. I hope it makes you feel better too."
I included this one because I enjoyed the story that accompanied it. Jessica told me that when he was writing and drawing he was singing "Shot through the heart" by Bon Jovi. This kid sounds pretty legit.
This second picture was done by Jack. It says: "When I feel sick I take a bath then take a nap. That's what helps me feel better."
I included this one because I really like the detail of his drawings. The pink part on the left side of picture is the sink with a toothbrush on in as he is sitting in the bath tub. I also liked how the bath tub was gray and the bed is blue. Gotta love kids!
Thanks J-Port! It was a great surprise that brightened my day! I love all the drawings and wonderful tips on how to get better.
Chemo: The Day After Round 2
As My friend Jessica Sullivan and her husband came to my treatment to keep me company. It was great to have company because it helps the time go by faster and is not as boring. So a special shout-out and thanks to them!
Also, I have been getting A LOT of question about the exact chemo I am currently receiving. So here is a detailed list about both of them.
So here it is:
Drug #1: Vinorelbine
Trade Name: Navelbine
Category: Chemotherapy Drug
Classifications: Vinorelbine belongs to a general group of drugs known as plant (vinca) alkaloids
Actions: Vinorelbine disrupts cell division, resulting in cell death. This drug cannot distinguish between cancer and normal cells, so some normal cells are affected, causing side effects.
How Drug is Given: Vinorelbine is given intravenously over 5-10 minutes
Precautions: Tell nurse immediately if you have any stinging or burning in the vein during or after the drug is administered.
More Common Side Effects:
Decreased white blood cell count with increased risk of infection
Numbness and tingling in hands and/or feet
Darkening of vein used to give the drug
Constipation
Less Common Side Effects:
Nausea
Vomiting
Sores in mouth or on lips
Hair Loss
Decreased platelet count with increased risk of bleeding
Drug #2: Gemcitabine
Trade Name: Gemzar
Category: Chemotherapy Drug
Classification: Gemcitabine belongs to a general group of drugs known as antimetabolites
Action: Gemcitabine disrupts growth of cancer cells. The drug cannot distinguish between cancer and normal cells, so some normal cells are affected, causing side effects.
How drug is given: Gemcitabine is given intravenously over an hour
More Common Side Effects:
Decreased white blood cell count with increased risk of infection
Decreased platelet count causing increased risk of bleeding
Decreased red blood cells with anemia
Fatigue
Less Common Side Effects:
Diarrhea
Sores in mouth and lips
Skin Rash
Hair thinning
Nausea
Vomiting
If you have anymore questions about any aspect of the treatment feel free to email me. I am very open and love to help others better understand the world of cancer. It can be a scary world, but there is hope!
Needle pokes: 3
Pills: 13
Happy Saturday! More post to coming in the next few days so if you want your questions answered now is the time to do it. You can either facebook them to me or submit them through email. There is a page on my blog entitled "Submit questions." Even if I don't know you and you have been blog stalking me your questions are still welcome!
Saturday, April 9, 2011
"Grandma" came to visit
Here are a few pictures of our time together.
This picture was taken just minutes before my first round of chemo
This picture is us at dinner at La Jolla Grove. It is an amazing restaurant in Provo. Their beef tenderloin medallions are in my top 5 meals I have ever had. Yes! That good.
Thanks again Grandma!
Friday, April 8, 2011
Food Brings People Together
Throughout the duration of the semester this class has become one of my favorite classes that I have ever taked during my time as a BYU Cougar.
I mean who would not like to have a three hour lab every Thursday morning that ends with the class eating together and talking about food! (I never had to eat breakfast on Thursdays because I knew that I would be getting a pretty good meal for lunch!)
The greater reason I loved this class is because of the professor. Her name is Mrs. Dana Adcock and she has become one of my favorite professors at BYU. During the first week of lab she went around and talked to everyone individually to get to know them. During my "interview" I told her about me being a foodie and that my travels are centered around restaurants and food rather than the landmarks and city. we hit it off from there talking about good restaurants each week.
Yesterday was the final lab day. It was the lab that the whole semester builds up to where your group creates their own menu and meal. (My health has not allow for me to attend classes as much as I would like to.)
However, Professor Adcock and my two cooking partner came and visited me at home and delivered my a plate of food. It was a fabulous! I enjoyed the food, but appreciated the visit more. (When you are going through chemo treatments you never feel that great. This prevent you from leaving your home often because you are weak, tired, or in pain, and therefore, you do not have much human interaction)
After handing me the plate of food my professor handed me a yellow gift sack. (This was greatly unexpected.) I opened it and to my surprise it contained a HOMEMADE apron that THE WONDERFUL Dana Adcock had made herself. I was super surprise and touched by the sincere care and thought that went into it. I almost had a tear come to my eye. (But my manly side fought it back) It is an amazing apron!
Here are some picture of the Apron!
Me modeling the apron
Monday, April 4, 2011
Once a Wish Kid Always a Wish Kid
My desire to intern at Make-A-Wish is to pay it forward. My cancer journey began when I was 16 years old, I had just started my junior year of high school when I went in to have surgery on my right thigh to remove what doctors believe was a clump of blood vessels. It turned out that it was actually a cancerous tumor instead.
During my first bout with cancer I was able to be a wish kid and have my wish come true (which was to snorkel the Great Barrier Reef). This experience allowed for me to feel like a normal kid for a while. It was a needed escape from my unfortunate reality.
It was this escape that I wanted to pay forward to other kids who are in similar situations that I was in. Every kid deserves the opportunity to be a kid and not have to face the daily grind of being a cancer patient, or dealing with other life threatening diseases.
Little did I know that this internship would provide a way for the people at the Make-A-Wish Foundation to once again brighten my situation during my fight against cancer. Today I went to visit those at the main offices because they said they had a little gift for me.
This is what was waiting for me when I arrived:
Just wanted to publicly thank everyone at Make-A-Wish of Utah for the get well card and huge basket of wonderful goodies! They really did spoil me!
Thank you Make-A-Wish you once again brought a smile to the face of a Wish Kid.